THE LAST DAY OF FEBRUARY IS RARE DISEASE DAY
The last day of February has become known as "Rare Disease Day". Today I am sharing some of the children who have a rare diagnosis. Please don't let their rare diagnosis scare you. These children may be nearly one of a kind, but they are just children, in desperate need of forever families, and often better medical care to support their needs. While looking at these photos and clicking on the links, research the conditions, and ask yourself if this could be your son or daughter!
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| Adrien - Arnold CHIARI Malformation |
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| Allegra - Treacher Collins Syndrome |
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| Bowie - Neurogenerative Disease |
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| Deacon - Jarcho Levin Syndrome, Spina Bifida |
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| Morris - Possible William's Syndrome |
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| Myles - Potocki Shaffer Syndrome |
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| Noah - Kleefstra Syndrome |
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| Roman - Fragile X Syndrome |
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| Sadie - Progressive Ossifying Fibrodysplasia |
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| Viv - Epidermolysis Bullosa |
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| Mina - Arthrogryposis, Possible Bruck Syndrome |
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| Pan - Respiratory Distress Syndrome |
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| Matvey - Pyruvate Kinase Deficiency |
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| Nick - Congenital Hypoventilation Syndrome |
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| Monica - Spina Bifida, CHIARI Malformation |
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| Ellowyn - Pyruvate Dehydrogenase Deficiency |
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| Dara - Arthrogryposis |
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| Paul - Multicystic Encephalopathy |
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| Ben - Chromosome 2q Deletion |
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| Grant - Pulmonary Hypoplasia |
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| Owen - Hirschsprung's Disease |
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| Hamlet - Congenital Myasthenia |
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| Chloe - Pulmonary Stenosis |
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| Asha - Spina Bifida, Agenesis of Corpus Callosum |
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| Liam - Arthrogryposis |
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