Nick - updated dec 2024

 

Listed June 2023

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"Nick"

Introducing handsome Mr. "Nick"! Nick is 11 years old and living in Asia. He is diagnosed with Congenital Hypoventilation Syndrome, and autism. Nick also uses a trach.

Nick is described as a "sweetheart" that will "light up a room with his cheerful personality!". He is a happy, friendly, gentle, and caring boy. Nick often shows concern for the other children in his orphanage, especially when someone is upset or crying. He loves playing with his friends, and connecting with others. Like most kids his age, Nick enjoys playing with electronics, having taught himself how to use an iPad, including creating and editing videos by himself! He is known as the "tech wiz" at his orphanage! Nick also likes to play with puzzles and Rubiks cubes! He is a quick learner!

Nick can go up to 11 hours without needing his ventilator, and usually only needs support while sleeping. He talks through a valve in his trach, though he can be hard to understand at times. He speaks in short sentences. Nick can walk independently about 15-20 meters, jump, kick a ball about 2-3 feet, and go up and down stairs with support, but tires quickly. He typically uses a wheelchair to get places quickly. Nick's caregivers say that he is easy to care for and comfort. He rarely throws tantrums, and builds meaningful relationships with his peers and caregivers. 

Nick's diagnosis is a result of a genetic mutation on chromosome 4p12. For more information, click here.

Nick began speech therapy in 2020 and has made significant progress. 

His caregivers believe that Nick has lots of potential to make even more progress in a family!

Sweet "Nick" sounds like an absolute ray of sunshine! Don't let his medical needs overshadow the fact that he is a little boy, needing a mama and papa. He is so smart and so capable, all he needs now is someone to say YES. Is Nick your son? Click the link to inquire!


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UPDATE DECEMBER 2024
Nick is now listed as "Henson" with Children's House International! I am so sad that this perfect boy is still waiting, but I am confident that 2025 will be his year! Don't let Nick continue to grow up without a family. Could he be your son? His update reads: Nick has been through a lot of medical issues and has recovered from some and is making amazing progress on others! For example, he used to have a g-tube for feeding but now can eat food orally. He is able to be off his trach tube for four hours a day now and they are even discussing surgery that will reduce his usage even more. Though he uses a wheelchair outside, Nick can run short distances, go up and down stairs, and his walking abilities are improving. He is independent in dressing, using the restroom, and more. 

Nick is also listed as "Hendrix" with Nightlight! His update reads: Nick is a bright and active little boy whose smile lights up the room. He has a love for the outdoors, where he enjoys running short distances. Nick is proud of his growing independence and can complete daily tasks on his own, a testament to his determination and steady progress. Since birth, Nick has overcome unique challenges, including living in the hospital due to his medical needs and the absence of caregivers. Yet, his resilience shines through every milestone he achieves. He has a speech delay and CCHS (Congenital Central Hypoventilation Syndrome), which are managed with routine checkups and care. His caregivers adore him and believe that a nurturing home environment will help him thrive even more. With the right family, Nick’s boundless energy, sweet nature, and determination will help him reach his full potential. 

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